#HustleMommies

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PROJECT

Key information about this research study: 

The following is a short summary of this study to help you decide whether to be a part of this study. Information that is more detailed is explained later on in this form. 

The purpose of this study is to examine stress and trauma experiences among mothers on the South and West Side of Chicago and the impact of stress on mental health and functioning at school, home, and work. If you choose to participate, you will be asked to attend one virtual focus group with other participants via Zoom where you will talk about your experiences with stress, how you deal with stress, and sources of support that are available to you. The focus group will last for 1.5 hours. The main benefit of being in this study is the ability to participate in a free, safe, and inclusive space where you can express your thoughts and feelings and receive the support of others. The primary potential risk of participation is some negative emotions or reactions that may arise from talking about personal issues. Your participation will help us develop a survey that will more widely assess the mental health needs of mothers in urban environments. Long term, the data collected will inform the development and implementation of mental health resources in community-based settings. 

Consent 

To Participate In Research

Why am I being asked to take part in this research study?

We are asking you to take part in this research study because you are a pregnant or parenting female, within the ages of 18 to 45 years old, a current resident of the South or West Side of Chicago, and English-speaking.

How many people will be in this study?

We expect about 60 people will be in this research study total. You will be among one of 10 to 15 people in one individual virtual focus group.   

What should I know about participating in a research study?

  • Someone will explain the research study to you. 

  • Whether or not you take part is up to you.

  • You can choose not to take part.

  • You can agree to take part and later change your mind.

  • Your decision will not be held against you.

  • You can ask all the questions you want before you decide.

  • You do not have to answer any question you do not want to answer.

What happens if I say, “Yes, I want to be in this research”?

The Project Hustle Mommies Focus Group is an online group meeting that will last approximately 90 minutes. You will participate in a focus group discussion with other mothers from the South or West Side of Chicago, the study investigator (Dr. Burnett-Zeigler), one research assistant, and Ms. Ariel Rainey, the founder of Hustle Mommies. You will be asked questions about the following topics: 

  1. Sources of stress

  2. Signs of stressors 

  3. Coping with stress

  4. How stress may affect your ability to function at home, school and work

  5. Sources of support

Video and audio recording of focus groups

All focus groups will be video and audio recorded. Your permission to audio record is required in order for you to participate. If you do not want your face to be shown in a video recording, you have the option to turn off your Zoom camera.  

 

The information gathered from focus group discussions will be used to better understand your primary mental health concerns and ways that we can develop programs to better support to meet your mental health needs. The data that we receive in the focus groups will be used to create a survey to more widely assess the mental health needs of urban mothers. Your identity will not be revealed in the recordings. To maintain confidentiality, you will choose a color to identify yourself in the focus group. All audio recordings will be destroyed at the end of the study. 

Your signature documents your permission to take part in this research.

Will being in this study help me in any way?

The main benefit of being in this study is the ability to participate in a free, safe, and inclusive space where you can express your thoughts and feelings and receive the support of others. We plan to create a survey that more widely assesses your mental health needs that will then be used to develop and implement mental health resources in community-based settings.

Is there any way being in this study could be bad for me?

No serious negative effects are expected to come from your participation in this study. You may feel some negative emotions or reactions from talking about personal issues. You many choose not to respond to any questions that you do not feel comfortable answering.

A possible risk for any research is that confidentiality could be compromised – that is, that people outside the study might get hold of confidential study information.  We will do everything we can to minimize this risk, as described in more detail later in this form.

What happens if I do not want to be in this research, or I change my mind later?

Participation in research is voluntary. You can decide to participate or not to participate. 

If you change your mind later, you can leave the research at any time and it will not be held against you nor will there be any loss or change to your Hustle Mommies services. 

If you wish to withdraw from the study, you will be asked to inform the research team. You may decide to withdraw from the study at any time. If you withdraw, no more information will be collected from you. When you tell the research team you wish to withdraw, the research assistant or an investigator (e.g. Dr. Burnett-Zeigler or Ms. Rainey) will ask if the information already collected from you can be used.

How will the researchers protect my information?

Although we ask everyone in the group to respect the privacy and confidentiality of participants, and to keep the discussion of the group confidential, we cannot guarantee this. Please keep this in mind when choosing what to share in the group setting. 

All the information collected throughout the study will be saved onto password protected servers. During the virtual groups, we will require all participants to refer to one another by self-selected colors instead of names. No one outside of the Co-Investigators and Research Assistant will have access to the information. The data addressed in any future reports, papers, and/or publications will be de-identified.

Who will have access to the information collected during this research study?

Efforts will be made to limit the use and disclosure of your personal information to people who have a need to review this information. We cannot promise complete secrecy. Organizations that may inspect and copy your information include the Institutional Review Board (IRB) of Northwestern University and other representatives of this institution. The IRB is a committee that protects the rights of people who participate in research studies. This study is being funded through the Alliance for Research in Chicagoland Communities and they may request access to the data.

The results of this study may also be used for teaching, publications, or for presentation at scientific meetings. 

If we learn about current or ongoing child abuse or neglect, we may be required or permitted by law or policy to report this information to authorities.

Dr. Inger Burnett-Zeigler, the Principal Investigator on this study, may be required by law to report to appropriate NU authorities any information you provide to me that indicates sexual misconduct, including sexual assault, sexual exploitation, dating violence, domestic violence, stalking, and sexual harassment.  Therefore, I cannot promise you complete confidentiality of any information you share with me about experiences of sexual misconduct.

 

It is the responsibility of the research team and focus group participants to protect the privacy and confidentiality of all group members. We ask that you do not share what is discussed by the other group participants outside of the focus group.

How might the information collected in this study be shared in the future?

We will keep the information we collect about you during this research study for study record keeping and for potential use in future research projects. Your name and other information that can directly identify you will be stored securely and separately from the rest of the research information we collect from you.

How might the information collected in this study be shared in the future?

We will keep the information we collect about you during this research study for study record keeping and for potential use in future research projects. Your name and other information that can directly identify you will be stored securely and separately from the rest of the research information we collect from you.

De-identified data from this study may be shared with the research community, with journals in which study results are published, and with databases and data repositories used for research. We will remove or code any personal information that could directly identify you before the study data are shared. 

The results of this study could be shared in articles and presentations, but will not include any information that identifies you unless you give permission for use of information that identifies you in articles and presentations.

Will I be paid or given anything for taking part in this study?

If you agree to take part in this research study, we will pay you $50 for full participation, meaning that you stay for the entire focus group.  A $50 gift card will be sent to you by mail.

Who can I talk to?

If you have questions, concerns, or complaints, you may contact the principal investigator for this research study, Dr. Inger Burnett-Zeigler. You may call her at 312-695-6711 on Monday – Friday from 9 am – 5 pm.

This research has been reviewed and approved by an Institutional Review Board (“IRB”) – an IRB is a committee that protects the rights of people who participate in research studies. You may contact the IRB by phone at (312) 503-9338 or by email at irb@northwestern.edu if:

  • Your questions, concerns, or complaints are not being answered by the research team.

  • You cannot reach the research team.

  • You want to talk to someone besides the research team.

  • You have questions about your rights as a research participant.

  • You want to get information or provide input about this research.

© 2021 Hustle Mommies by Ariel DeNey. Created with Purpose & Love by Its Araic.